NORD Cultura de la Empresa

Estado de la misión

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Declaración de la visión

A national awareness and recognition of the challenges endured by people living with rare diseases; A culture of innovation that supports basic and translational research to create diagnostic tests and therapies for all rare diseases; Access for all patients to the diagnostics and therapies that will extend and improve their lives. A regulatory environment that encourages development and timely approval of safe, effective diagnostics and treatments.